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Journal Article 2014; 35(Suppl 1): 19-25 PubMed PMID: 25433350 Citation  Keywords:  Activities of Daily Living:psychology, Adolescent, Adult, Crohn Disease:nursing, Czech Republic, Female, Humans, Male, Nursing Staff:standards, Patient Satisfaction, Quality of Life:psychology, Social Support, Surveys and Questionnaires, Young Adult,.   

OBJECTIVES: To determine the quality of life of patients with Crohn's disease and to determine if this is reflected by the quality of nursing care.

METHODS: For the purpose of this research, we used a generic standardized questionnaire of the quality of life, published by the World Health Organization (WHOQOL-100). The questionnaire was distributed among 100 patients with Crohn's disease and among 1456 and members of healthy population. To analyze the results, we used the SPSS program and appropriate statistical methods.

RESULTS: The comparison of the domain scores of population standards in the Czech Republic and the respondents with Crohn's disease revealed a difference in the domain "physical condition", where the mean value was at the limit of the lower interval of the standard, and in the domain of "independence".

CONCLUSION: The results given in this study define the possibilities of nurses and their functioning associated with altered quality of life. An evaluation of the most affected areas allows nurses to determine an appropriate intervention. Providing nursing care, in accordance with the latest knowledge, must be based on the quality of life. This newly incorporated area offers healthcare professionals a new dimension for assessing and determining subsequent interventions....

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Journal Article 2004; 25(Suppl 1): 79-85 PubMed PMID: 15735589 Citation  Keywords:  Child Development, Female, Humans, Infant, Newborn, Infant, Premature, Learning, Maternal Behavior, Mother-Child Relations, Mothers:psychology, Social Identification, Social Support, Stress, Psychological:psychology,.   

: This article draws together thoughts derived from an experienced clinical psychologist's practice, with parents of ill and premature infants in the context of a psychological service for children and parents in a paediatric and maternity teaching hospital. Parents were those referred by attendant neonatologists in intensive neonatal care who observed acute distress. Referral was usually some weeks after birth and help continued until after discharge, in some instances after the death of the infant. The particular approach adopted was that of offering parents a therapeutic contact which, allowed them talk over these thoughts and feelings for which they had little other skilled listening environment. Parents chose the opportunity of a safe, calm and confidential contact to explore deep feelings and draw on their own strengths and an understanding of their own vulnerabilities. The novel insights derived and the clinical material presented were used to develop an understanding of the issues a support service should address. Key aims are described and should be incorporated to restore and enhance personal strengths and the mother child relationship hence contributing to positive outcome in infant development. Reference is made to the importance of understanding how women achieve soothed states and restoration of empowerment when birth presents extra challenge....

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